advocacy, Current events, disability, Home healthcare, Life, Motivation, SCI awareness, spinal cord disorder, spinal cord injury

HEROES Act…

I have not had the hiccups for 15 years… Not once! This is the absolute truth, but there is so much more to this blog than my ability to eat spicy food and drink a carbonated anything without a single hiccup.

I know… I get it… Not another write up about COVID-19. I am asking you to give this one a chance, because this one is different. So, if you are still with me… Thank you.

Right now it is common knowledge that the risk factors for catching this virus are much higher for those who are 60 years of age and over, and also for those who or immunosuppressed. Along with these risk factor groups, I want to talk about the population of people with spinal cord injuries/disabilities (SCI/D). If we look just at the United States, the estimated number of people with SCI is approximately 294,000. That is equivalent to about 54 cases per 1 million people (“Spinal Cord Injuries,” 2020).

I am passionate about the SCI/D population, because I am one of those 294,000, and I have a voice to help, to be an advocate, and to raise awareness. COVID-19 is a virus that affects the lungs, which makes it extremely dangerous for those with spinal cord injuries, especially when the level of injury is higher at the cervical level. My level of injury is diagnosed as C5 incomplete. I am not on a ventilator, and I consider myself lucky, but my specific injury has affected my body from my chest and down.

Now, to answer the question of why this makes people with SCI/D more susceptible…

I have been navigating through life in my wheelchair, without hiccupping, for 15 years. I see the lack of having to deal with hiccups as a silver lining, but it also means that I do not have the capability to cough or clear my lungs without assistance due to the partial paralysis of my diaphragm and core muscles. In order to have the full potential to breathe and cough, it takes the combined teamwork of three muscle “groups” in your body… The intercostal muscles (between ribs), the abdominal muscles, and the diaphragm which takes on most of the work. So, this inability to have full respirations or powerful and effective coughs is a major cause of immunosuppression in anyone who has a SCI/D. Some of the other causes of immunosuppression that are common complications that go along with spinal cord injuries are diabetes, urinary tract infections, and open pressure injuries. All of these provide an open invitation for viruses and bacteria to enter the body. As a C5 quadriplegic, I have dealt and still deal with some of these complications, and it by no means is a quick fix. Now I am sharing this information not only to raise awareness, but I will be the first to admit that I knew nothing about SCI/D before my diving accident. I want the level of awareness to change and I am passionate about finding ways to make that change.

 

united spinal logo

 

This brings me to the topic of how you can TAKE ACTION, and help bring change. The United Spinal Association is an amazing organization that is one of the major leaders in fighting to protect the health and safety of disabled veterans, wheelchair users, and anyone with a spinal cord injury or disorder. The support and resources they provide are extremely important during times like now, and there are various ways that you can reach out for support or get your hands on some valuable resources.

United Spinal Cord Resource Center:

(800) 962-9629

www.unitedspinal.org/ask-us/

One very simple way that you can take action is by visiting the online United Spinal Action Center and offer your support for the important provisions of the Health and Economic Recovery Omnibus Emergency Solutions Act (HEROES Act). Even though it is unlikely that this bill will pass through the Senate, it is extremely important that your Representatives and Senators are aware of the provisions that the United Spinal Association supports in future consideration of this legislation that can directly affect those with SCI/D, their families, and their caretakers.

You can visit the action center and truly help make a difference by a few simple clicks of the mouse, sharing this information with others, and offering your support in any way possible…

  1. Drop in at www.unitedspinal.org/action-center/
  2. Scroll down to COVID-19 Action Alerts
  3. Click on “Act Now” under “Support Important Provisions of the HEROES Act.”
  4. Take a few minutes to read through the six provisions that United Spinal supports, fill out your information, and click “Send Message.”
  5. Smile… because you are making a difference.

 

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Information that is found in this blog and important information related to COVID-19 and SCI/D can be found at the following locations:

 

United Spinal Association / COVID-19 Advocacy Resources & Guidance  

https://unitedspinal.org/covid-19-advocacy-resources-and-guidance/

 

Christopher & Dana Reeve Foundation / Posts in COVID-19

https://www.christopherreeve.org/blog/tags/covid-19

 

National Spinal Cord Injury Statistical Center / Spinal Cord Injury Facts and Figures at a Glance

https://www.nscisc.uab.edu/Public/Facts%20and%20Figures%202020.pdf

 

Data Source:

National Spinal Cord Injury Statistical Center. (2020). Spinal cord injury facts and figures 

      at a glance. https://www.nscisc.uab.edu/Public/Facts%20and%20Figures%202020.pdf

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